Cancer survivorship is defined as living before, during, and after cancer treatment. To help cancer survivors live better lives research is important to help us learn more about how cancer and its treatments can effect us.
Survivor JourneysTM presents these research opportunities for you to consider as a participant. We have discussed the study directly with the principal researcher and we will only post this if we feel it will add much needed information to the cancer survivorship community. If you have further questions about any study please use the provided links.
Research Volunteer Needed
While cancer treatments have progressed, little is known about their long-term effects on functioning. Cancer related cognitive impairment (CRCI) is an obstacle for many survivors as they are transitioning from life with cancer to life in remission. While the physical body has healed, there is little attention placed on healing the mind. This is an important topic because many people have undergone cancer treatment and have been affected by this. The purpose of this study is to examine the effects of cancer treatments on long-term psychological health and mental functioning. By gaining a better understanding of cognitive impairment following cancer treatment, doctors will be better able to treat and educate current cancer patients.
We Need Your Help
Consider sharing this with family or friends that may be eligible. With your help, we can find a way to stop multiple myeloma before it starts!
I am writing to tell you about an innovative nationwide research study at the Dana-Farber Cancer Institute called the PROMISE Study. The goal of the PROMISE Study is to test at-risk individuals for early warning signs of multiple myeloma, which is a cancer of the blood. These early warning signs, which are often called “precursor conditions,” include monoclonal gammopathy of undetermined significance (MGUS) and smoldering multiple myeloma (SMM) and can be identified with a simple blood test. We hope the information gained from the PROMISE Study will contribute to future therapies that will prevent multiple myeloma from developing.
Who is eligible? Individuals between the ages of 40 and 75 who self-identify as being Black/African American are considered at higher than average risk of developing multiple myeloma in their lifetime and are eligible to enroll in the PROMISE Study. In addition, those between the ages of 40 and 75 with a first-degree relative who has been diagnosed with MGUS, SMM, or any blood cancer are considered eligible. Of note, a first-degree relative includes a parent, a sibling, or a child.
What does the study involve? Participants are asked to complete a study questionnaire and go to a local clinic or lab to collect a blood sample to ship back to the PROMISE Study for analysis. Participants will be compensated $50 for their time in the form of a gift card after completing the questionnaire and screening blood draw. The research team will analyze this blood sample to detect if participants have one of the two precursor conditions: MGUS or SMM. Participants that test positive for one of these conditions will be invited to take part in a group that will be followed on a regular basis. Participants that test negative will be invited to be re-screened every three years.
To learn more information about the PROMISE Study, please visit www.PromiseStudy.org.
We are also happy to answer any questions at (617) 582-8544 or by email at PROMISEstudy@partners.org
Thank you for your consideration. With your help, we can find a way to stop multiple myeloma before it starts! Irene Ghobrial, MD